- Deater Foundation,Inc. Continuously funds research to find a treatment or cure for HSAN1. Http://www.deaterfoundation.org
- Muscular Dystrophy Foundation funds research for various neuromuscular diseases, including HSAN1 in 2014. MDA Care Centers throughout the U.S., offer comprehensive care to individuals affected by neuromuscular disease. Https://www.MDA.org
- Charcot-Marie-Tooth Association sponsors patient-centric, multi-disciplinary CMT clinics throughout the U.S., which help people with CMT manage symptoms and improve their quality of life. Https://www.cmtusa.org